Abstract
Background: The basis of any research is the use of valid and reliable tools for collecting information. One of the valid and reliable tools used to identify the family management in chronic childhood diseases is “FaMM” which has never been translated and validated in previous research in Iran. 
Objective: The present study aimed to translate, incorporate cultural adaptation, and determine psychometric features of FaMM among Iranian families with a child with a chronic disease.
Methods: This study was conducted using the methodological research approach in Tehran, during 2016-2017. The translation of FaMM was done using “World Health Organization Translation and Cultural Adaptation Guidelines”. The preliminary psychometric evaluation of the above tool was performed by determining the validity (face and content validity) and reliability (internal consistency and stability). Data analysis was performed using IBM-SPSS 22. Content validity (CV) was first examined using qualitative and quantitative methods. In the qualitative phase, experts' opinions were received in order to observe grammar, wording, item allocation and scaling. Then, quantitative CV was examined using Content Validity Ratio (CVR) and Content Validity Index (CVI; Scale-CVI /Avg, Scale-CVI/ UA). In order to calculate the internal consistency of the items, Cronbach’s alpha coefficient of statements was calculated. Test-retest method was used for determining the stability of the tool, and the obtained scores were compared using ICC.
Results: The Persian version of FaMM has conceptual, semantic, idiomatic and by-item equivalence, as well as a desirable preliminary validity and reliability for assessing the management of families with children with chronic disease. The results of CVR determination indicated that all questions were larger than Lawshe’s Table number (0.49). The CVI results showed that all questions had a score higher than 0.79, and therefore were recognized as appropriate. In the Scale-CVI /Avg, the score was 0.98 and in the Scale-CVI/ UA, the score was 0.80. The Cronbach's alpha value for the scales was obtained in the range of 0.55 to 0.87 and the ICC of scales ranged from 0.71 to 0.94.
Conclusion: The translation and cultural adaptation process of FaMM led to the design of a tool adapted to Iranian culture which can be applied in this context, and after the implementation of the final psychometric evaluation process, comparing data on how families with a child with chronic disease are managed with other communities can be possible.

 

 
Keywords: Translation, Instrumentation, Household, Disease management, Measure

 

» HTML Fulltext    » PDF Fulltext    » doi: 10.19082/6942
AdidasAIR MAX PLUS

The  most recent editorial (June 2021)

Ethics of Publishing Case Reports: Do We Need Ethics Approval and Patient Consent?

An editorial by Dr. Mehrdad Jalalian

Read more.


The worldwide spread of COVID-19 as an emerging, rapidly evolving situation, and the dramatic need of urgent medicine or vaccine, has rapidly brought new hypotheses for pathophysiology and potential medicinal agents to the fore. It is crucial that the research community provide a way to publish this research in a timely manner.

 

To contribute to this important public health discussion, the Electronic Physician Journal is excited to announce a fast-track procedure to help researchers publish their articles on COVID-19 related subjects that fall under the broad definition of public health, internal medicine, and pharmacology. We are especially welcome to all hypotheses about the pathological basis of the COVID-19 infection and the possible characteristics of potential medicine and vaccine. Submit your manuscript here

 


Our previous editorial (June 2020)

Lessons from COVID-19 pandemic and the Morocco’s success story.

An editorial by Dr. Benksim Abdelhafid (Morocco)

Read more.


 

The 6th World Conference on Research Integrity (WCRI) is to be held on June 2-5, 2019 in Hong Kong.

The WCRI is the largest and most significant international conference on research integrity. Since the first conference in Lisbon in 2007, it has given researchers, teachers, funding agencies, government officials, journal editors, senior administrators, and research students opportunities to share experiences and to discuss and promote integrity in research. Read more:


 

TDR Clinical Research and Development Fellowships

Call for applications

Deadline for submission: 7 March 2019, 16:00 (GMT)

TDR provides fellowships for early- to mid-career researchers and clinical trial staff (e.g. clinicians, pharmacists, medical statisticians, data managers, other health researchers) in low- and middle-income countries (LMICs) to learn how to conduct clinical trials. Read more:


Meta-Analysis Workshops in New York, USA, and London, UK, in April and May 2019

Don't miss this exceptional opportunity to learn how to perform and report a Meta-analysis correctly. Two Meta-analysis workshops are organized in April and May 2019 by Dr. Michael Borenstein in New York, USA (April 08-10, 2019) and London, UK (May 27-29).

About the Instructor

Dr. Michael Borenstein, one of the authors of Introduction to Meta-Analysis, is widely recognized for his ability to make statistical concepts accessible to researchers as well as to statisticians. He has lectured widely on meta-analysis, including at the NIH, CDC, and FDA. Read more: